Look into my eyes
Deep in the you
of me, of us.
CKS
Due to my health I had to close my studio early for the June Toe River Arts Studio Tour where I was having the Celebrate Life Sale and was to continue the sale online after the tour.
I had a flare of the NMO. Along with Rituxan, I had 5 days of IV Steroids with an oral taper. I continue to struggle. Fatigue is an issue and my arms are still weaker than they were. I am better despite the struggles. My breathing is not the same since the flare either.
I am taking care of things one at a time. I have not been in the studio. I tried to be there a couple of short visits, mainly to print a few digital paintings to make sure my printer was still happy. I will admit it was exhausting.
Treatment changes to hopefully help keep my health more stable is moving Rituxan from 4 months to every 3 months. I must admit it is a little unsettling. I started at every 6 months and when that was not okay, I moved to every 4 months and for quite awhile was stable until i wasn’t. What happens if Rituxan completely fails? I don’t have a complete answer. I don’t have access to the new NMO approved drugs because I am not antibody positive.
What we are adding is pulse dosing with IV Steroids. This means once a month I will have 3 days of IV Steroids. Steroids do usually make me feel better. Steroids come with there own side effects I don’t like. It is a matter of weighing benefit vs. side effects.
pulmonology, we are doing testing, and depending on the outcome, we might be adding daytime oxygen in addition to my ventilator.
I am working to get back in the studio and hopeful to be there soon.
We are getting more and more pieces up on the CLFStudio Shop for the CELEBRATE LIFE SALE!!! Going on Now! Finally getting back to what we started during the studio tour.
We are working hard to get works up day in day out and they are deeply discounted. I turned 50 this year and I did not know if I would even make it to 50, so this is a great time to celebrate.
So please share far and wide. I would really appreciate it. and I hope you enjoy, and maybe find that perfect piece for yourself or someone you love.
Thank you so much for your continued encouragement and support!
paint much love, always,
Connie Karleta Sales
a.k.a. This Crooked Little Flower